Patient Support Liaison

About Us 
Join us in helping patients with rare diseases. At Egetis Therapeutics we challenge the status quo for the benefit of those in need. We offer an open, positive and supportive culture where everyone can be their best. Through trust, we work seamlessly across functions. As an employee you are empowered and encouraged to have an entrepreneurial spirit, enjoying an organization with conscious and efficient decision-making and we take pride in our collaborative working environment!
In February 2025, the European Commission approved Egetis’ Emcitate® (tiratricol) as the first and only treatment of peripheral thyrotoxicosis in patients with monocarboxylate transporter 8 (MCT8) deficiency (Allan-Herndon-Dudley syndrome). In March 2026, the U.S. FDA accepted the filing of Egetis’ New Drug Application (NDA) for Emcitate® (tiratricol) for the treatment of MCT8 deficiency and granted Priority Review. The Prescription Drug User Fee Act (PDUFA) target action date is September 28, 2026. 
As a courageous, committed, and collaborative organization, we are seeking to grow our team to drive success both in the pre-launch and post launch phases of our anticipated U.S. approval.
For more information, please visit our website at www.egetis.com or follow us on LinkedIn and Facebook

Our Values 
Courageous - Challenge the status quo for the benefit of the patient 
Committed - Operate with high ethical standards through an efficient organization to deliver top quality results 
Collaborative - Through trust, work seamlessly across functions and with external partners 
 
About the Job
The Patient Support Liaison (PSL) is a high touch, non-promotional role dedicated to supporting caregivers, patients and healthcare professionals from prescription through long-term therapy support so that patients can navigate the complexities of access to therapy, start treatment efficiently and follow their prescribed course of treatment. The PSL focuses on access, logistics and resource support and does not provide medical advice.  The PSL supports patient access to therapy by guiding patients and caregivers through the insurance, coverage, and reimbursement process, and providing disease state, product, and medication administration education. The PSL also interacts with HCP practices/groups to help support patient access and resolve reimbursement issues. The PSL serves as a central point of coordination for patient cases, ensuring timely hand-offs to internal and external partners while operating within clearly defined role boundaries separate from sales and medical teams. 

Location
This is a field-based role that will require travel. Our office is in Boston, MA, and there may be travel from time to time required to this location. 

This role reports to our Head of Market Access and Pricing, North America Qualifications

• Bachelor’s degree required in life sciences, public health, nursing (BSN), healthcare administration 
• 5-8+ years of experience with hands on, high touch patient engagement, access & reimbursement, field reimbursement or related field-based roles with a portion in small biotech
• Direct experience supporting a launch in rare disease or highly complex therapeutic areas with limited resources
• Strong communication skills with patients, their caregivers and HCP offices
• Ability to travel both nationally and locally
• Deep working knowledge of pharmacy-benefit and specialty pharmacy workflows including limited networks.
• Strong knowledge of Insurer, PBM and Medicaid policies and processes, including PA, appeals, and medical exceptions processes 
• Proactively anticipate payer coverage trends and behaviors to minimize barriers to access 

Key Competencies

• Strong communication and listening skills with demonstrated behaviors of empathy, active listening and clear and supportive communication
• Ability to explain complex processes in simple terms
• Cultural sensitivity and patient-centered communication
• Clear understanding and recognition of boundaries of non-promotional patient engagement and appropriate handling of patient information
• Ability to manage multiple priorities at the same time with consistent attention and diligence
• Ability to navigate and solve complex issues, coordinating amongst multiple stakeholders in a timely fashion
• Strong understanding of how to generate insights of data to identify potential barriers

Patient Experience 
Patients

• Serve as the liaison for patients, and caregivers, building meaningful relationships and delivering high touch support.
• Provide overview of the process to obtain access to therapy, enrollment and identify potential barriers to access and adherence (eg. coverage changes, refill logistics, copay issues, social support needs). 
• Help patients understand insurance coverage, copay obligations, and financial assistance options. Connect patients and caregivers to appropriate resources, including affordability programs, advocacy organizations, and educational support, in compliance with company policies.
•  Facilitate escalation of access delays, denials, or affordability concerns and coordinate with the specialty pharmacy regarding benefits investigation outcomes and coverage barriers.
• Monitor patient progress through enrollment, approval, dispensing, and refill milestones.
• Demonstrate compassion that recognizes the unique burden of living with a rare disease and tailor communication to individual health literacy levels and cultural backgrounds; coordinate interpreter services when needed.
• Route clinical or medical inquiries to the prescribing HCP.

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Healthcare Providers

• Educate HCP offices on enrollment workflows and specialty pharmacy requirements, providing awareness of missing information requests between offices and specialty pharmacy.
• Educate HCP and staff on payer requirements, prior authorization (PAs), electronic (ePA) platforms and, as required, the identified processes for submissions and appeals. Facilitate communication regarding shipment delays.
• Collaborate closely with specialty pharmacy on case status, dispensing milestones, and patient onboarding to support patient access and support resolution of challenges including denied PAs, medical exceptions and formulary restrictions.

Case Management, Documentation and Insights

• Identify gaps or bottlenecks in coordination between HCP office and specialty pharmacy. 
• Provide field insights on relevant payer dynamics, access trends and patient experience gaps to inform continuous improvements.

 
Compliance, Privacy and Ethics

• Ensure all activities comply with HIPAA, privacy regulations, and company policies.
• Identify and report adverse events and product quality complaints within required timelines.
• Collaborate effectively with Commercial, Market Access, Medical, and external partners while maintaining non-promotional boundaries

 
Operational Excellence

• Contribute to launch readiness and identify process gaps in a dynamic launch environment and propose practical, compliant solutions.
• Monitor key performance indicators including time to therapy, PA approval rates and response times. 
• Utilize CRM and case management systems to track performance and drive data-informed improvements.