Associate Director, Patient & Professional Advocacy

At Insmed, every moment and every patient counts — and so does every person who joins in. As a global biopharmaceutical company dedicated to transforming the lives of patients with serious and rare diseases, you’ll be part of a community that prioritizes the human experience, celebrates curiosity, and values every person’s contributions to meaningful progress. That commitment has earned us recognition as Science magazine’s No. 1 Top Employer for five consecutive years, certification as a Great Place to Work® in the U.S., and a place on The Sunday Times Best Places to Work list in the UK.

For patients, for each other, and for the future of science, we’re in. Are you?

About the Role:

We’re looking for an Associate Director, Patient Advocacy & Professional Engagement on the Patient Advocacy team to help us expand what’s possible for patients with serious diseases. Reporting to the Director, Patient Advocacy and Professional Engagement, you’ll play an instrumental role in building and leading patient advocacy and professional society engagements, supporting the overall program strategy. Your primary focus will be on cultivating strong relationships with patient communities, advocacy groups, professional societies and individual patients, to better understand their needs, experiences, and challenges. You will also be instrumental in providing the perspective as we design and execute our clinical development programs. You will work cross-functionally to integrate actionable insights from patients, patient communities and HCPs into our programs and decisions.

What You'll Do:

In this role, you’ll have the opportunity to be the bridge between patient organizations and patients, physician organizations and KOLs, and our organization, ensuring their perspectives influence our decision-making processes, clinical development strategies, and patient support initiatives, as well as support large-scale collaborative research and quality improvement projects with patient and professional associations aligned to internal business objectives and external strategic priorities.  You’ll also:

• Develop and execute a Patient & Professional Organization engagement strategy aligned to internal business needs and external community needs.
• Collaborate and co-create with Patient & Professional Organizations to identify and implement innovative initiatives to empower patients to seek optimal and informed care.
• Participate and support Patient Organization events, workshops, and conferences to promote awareness and foster patient community engagement.
• Collaborate and co-create with Professional Medical Associations to identify and implement innovative initiatives intended to address the evolving medical science related to Ismed therapeutic areas, as directed.
• Build and maintain a KOL strategy with the identified thought leaders in the assigned therapeutic/disease states.
• Implement a systematic strategic framework to ensure patient experience is incorporated into all critical business decisions across the asset lifecycle
• Engage with patient advocacy groups, foundations, and individual patients to understand their perspectives and needs as it related to Patient-Focused Drug Development
• Establish and maintain strong relationships with key stakeholders in the patient community.
• Collaborate with cross-functional teams to ensure patient perspective is internally understood and incorporated into company culture as well as ensure patient needs are considered at all stages of product development.
• Represent the company in external forums and conferences related to patient advocacy.

Who You Are:

You have a Bachelors’s degree in life sciences, healthcare, public health or related fields along with 6+ years of experience in patient advocacy/engagement or related roles within the biotechnology, pharmaceutical, or healthcare industries.

You are or you also have:

• Strong understanding of Pulmonary and Rare Lung diseases, with an ability to communicate complex scientific concepts to diverse audiences.
• Strong track record of performance in developing and driving strategic projects, including managing budgets.
• Excellent communication and interpersonal skills to engage with patients, advocacy groups, and internal stakeholders effectively.
• Experience working across a matrixed team structure and prioritizing appropriately.
• Demonstrated peer leadership experience and ability to inspire and motivate a matrixed team.
• Deep empathy for patients and their families, with a passion for advocating on their behalf.
• Knowledge of regulatory and ethical considerations related to patient advocacy and engagement.
• Passionate about making a difference in the lives of patients with serious and rare disease.
• Familiarity/experience with regulatory and pharmaceutical legal promotional review processes
• Highly organized with a strong attention to detail, clarity, accuracy, and conciseness

Nice to have (but not required):

• Advanced degree preferred
• Experience working in an early-stage and/or mid-cap sized company highly desired

Where You’ll Work

This is a fully remote role. It can be performed effectively from anywhere while staying connected to your Insmed team and community. Occasional travel for team meetings or events will be expected.

Travel Requirements

This role requires occasional domestic/international/global travel (approximately 15%)

Pay Range:

$155,000.00-201,500.00 Annual

Life at Insmed
 

At Insmed, you’ll find a culture as human as our mission—intentionally designed for the people behind it. You deserve a workplace that reflects the same care you bring to your work each day, with support for how you work, how you grow, and how you show up for patients, your team, and yourself.

Highlights of our U.S. offerings include:

• Comprehensive medical, dental, and vision coverage and mental health support, annual wellbeing reimbursement, and access to our Employee Assistance Program (EAP)

• Generous paid time off policies, fertility and family-forming benefits, caregiver support, and flexible work schedules with purposeful in-person collaboration

• 401(k) plan with a competitive company match, annual equity awards, and participation in our Employee Stock Purchase Plan (ESPP), and company-paid life and disability insurance

• Company Learning Institute providing access to LinkedIn Learning, skill building workshops, leadership programs, mentorship connections, and networking opportunities

• Employee resource groups, service and recognition programs, and meaningful opportunities to connect, volunteer, and give back

Eligibility for specific programs may vary and is subject to the terms and conditions of each plan. 

Current Insmed Employees: Please apply via the Jobs Hub in Workday.

Insmed Incorporated is an Equal Opportunity employer. We do not discriminate in hiring on the basis of physical or mental disability, protected veteran status, or any other characteristic protected by federal, state, or local law. All qualified applicants will receive consideration for employment without regard to sex, gender identity, sexual orientation, race, color, religion, national origin, disability, protected Veteran status, age, or any other characteristic protected by law.

It is unlawful in Massachusetts to require or administer a lie detector test as a condition of employment or continued employment. An employer who violates this law shall be subject to criminal penalties and civil liability.

Unsolicited resumes from agencies should not be forwarded to Insmed. Insmed will not be responsible for any fees arising from the use of resumes through this source. Insmed will only pay a fee to agencies if a formal agreement between Insmed and the agency has been established. The Human Resources department is responsible for all recruitment activities; please contact us directly to be considered for a formal agreement.

Insmed is committed to providing access, equal opportunity, and reasonable accommodation for individuals with disabilities in employment, its services, programs, and activities. To request reasonable accommodation to participate in the job application   or interview process, please contact us by email at TotalRewards@insmed.com  and let us know the nature of your request and your contact information. Requests for accommodation will be considered on a case-by-case basis. Please note that only inquiries concerning a request for reasonable accommodation will be responded to from this email address.

Applications are accepted for 5 calendar days from the date posted or until the position is filled.

For New York City Residents:

To assist in identifying candidates with qualifications matching those required and/or preferred for this role, Insmed uses an Automated Employment Decision Tool (“AEDT”) that employs artificial intelligence to analyze and score information provided in resumes and application materials including, but not limited to, skills, work experience, education, and job-related qualifications. The AEDT does not make final hiring decisions and all final hiring decisions are subject to human oversight and/or review.

If you are an applicant for this role and a New York City resident, you have the right to request:

 

• A reasonable accommodation, if one is available under applicable law, by emailing TotalRewards@insmed.com; and/or

• An alternative selection process by emailing Privacy@insmed.com.

• Information about the type of data collected, the source of that data, and data retention practices related to the AEDT by emailing us at Privacy@insmed.com.